Tuesday, May 22, 2012

What's In A Label?


A colleague of mine was talking about a friend of hers who has cancer - let's call her Jane. And Jane told my friend that she doesn't want to be known as "Cancer Girl." She doesn't want to be that girl that people say, "Oh, Jane. Didn't you hear? She has cancer." Doesn't want to be the one where a colleague she barely knows comes up to her and puts a gentle hand on her shoulder, and with a slightly cocked head, says, "Are you alright?"

I hear you, Jane. 

It's hard to understand the multiple layers and labels that make up any individual.  Each layer adds a voice to the complicated song that defines us -- and few people hear the chorus of voices. It's easier to hear just that one voice and to know what the voice sounds like. That's what drives us to labels.

You're a democrat or a republican. You're a Gen Xer or a Baby Boomer or a Millennial. You're a soccer mom or a working mom; a lawyer; a doctor. Each one conjures up its predefined notion of what that label is. But it's never that cut and dried. 

To really understand someone, you need to know which of the labels apply - you need to know the voices that make up their song. The problem with the cancer label is that it is always the loudest voice in the chorus. 

I don't want to be known as The Guy With Cancer. Not just because of the complications of people's reactions to that news. But because it threatens to drown out the other voices in my song. I'm a Dad, a husband, a son, a brother, a friend, a colleague, a manager, a coach, a runner, a writer, a soccer player, a center fielder and many other things.  

Will any of them be audible over the din of a cancer label? 

One of the ongoing challenges of cancer is to not let it define you. I can't control how people label me - and that's true with or without a cancer diagnosis -- but what I can control is how I perceive myself. And no matter how many people know I have cancer; no matter what treatments may or may not come, I'm never going to think of myself as "The Guy With Cancer."

--michael

 

Sunday, May 20, 2012

A New Name




Well, it's official.

I've flipped the switch. Anyone can find this blog, which is now officially: Thinking Out Loud: A Cancer Blog. I had toyed with the name, "Out of Control" but it seemed too pessimistic for me. So there you have it.
 I actually went back and read everything I've written since last June and except for a few typos and such, there was little I'd change. But it's interesting to see how my outlook has changed in the last nine months. 

Thanks for your comments and ongoing support.

--Michael

p.s. - I added a link to Dr. LaCasce in some of the older posts (and here too). It's her profile on dana-farber's web site, including a short video of her.

Saturday, May 19, 2012

Inching Closer to Public


Well, I shared the link to my blog post on Facebook moments ago. So now my tight group of friends and family who know is expanded to the 200 or so "friends" on Facebook, including a bunch of high-school friends who I haven't spoken with in about 30 years. 
Interesting.

It's not as if anything has happened recently that's driving this into a more public discussion. It's just that I might be ready.

It's hard to see your mindset change as it's happening. But over nine months, that's what's happened. In the beginning, I struggled with how to define myself -- cancer patient implies someone in active treatment; cancer survivor implies someone who has beaten cancer. Neither seemed right. I never said: I have cancer; I always said, "I was diagnosed with cancer."

Now when I look at it, I see why. Saying I have cancer is an admission of a current status. If I just say "I was diagnosed," it isolates it in the past (and in passive voice, at that). It's somewhat of a mental defense mechanism that I must have needed until I could wrap my mind around what it meant to have cancer.

I'd be lying if I said I know what it means, but I know what it doesn't mean. It doesn't mean I'm getting radiation. Or chemo. It doesn't mean I'm losing my appetite. Or my hair.

Right now, it doesn't mean anything. So I think in the next day or so, I'm going to flip the switch on the blog and go from a private blog open to just you all, to a public blog. The title: Thinking Out Loud: A Cancer Blog. And I'm going to try to commit to three posts a week. (You don't have to read them all.)

We'll see what happens. Maybe two people will read it and it will help them. Maybe two hundred will. Whatever happens, though, I'm ready.